Aging Parents

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  • @Sarasa sorry to hear about the arguments, that sounds horrible. Here's hoping that getting the professionals involved will help. We didn't have that when Mother-in-law had to go into a home, because Husband doesn't have any siblings to argue with.

    If the question ever arises with my own parents, I plan to take the coward's way out, adopt a policy of strict neutrality, and hope I don't end up refereeing a feud between my sisters...

    @North East Quine (hugs)
  • Oh @Sarasa
    Praying
  • jedijudyjedijudy Heaven Host
    I didn't know whether to put this here, or on TICTH about my useless as tits on a frog sister.

    It may surprise you all to know, that 2020 was a year of rest and relaxation for me in the parent care department. According to Ms. Useless.

    My daughter and her dear hubby were so upset about it all, that s-i-l had a dream that I called for him to bail me out of jail because in the dream, I punched Useless in the face! :lol:

    Poor Dad is worried about me. He said I need a vacation. I told him that I'm fine because I'm not leaving him and Mom alone. He said Useless could take care of them, and I reminded him that the last time (a year and a half ago) I went to visit my BFF for ten days, Useless only stayed for two days. I know, you've heard the story before. It just hurts my heart that my poor daddy has to even think of that, in spite of the fact that I tell both of them repeatedly that I'm very glad to have them with me to take care of.

    Just had to spout a little.
  • PigletPiglet All Saints Host, Circus Host
    Spout away, JJ - that's what this thread is for! <hug>
  • jedijudyjedijudy Heaven Host
    Thanks for the hug, Piglet! I need that! <3
  • LydaLyda Shipmate
    My best friends' mother, who always had a mind of her own (sometimes to the chagrin of her daughter), determined on her own years ago to move out of her nice mobile home into a nicer retirement place and she still seems to be going strong there in her mid-90s according to my friend. A bit of dementia and quite a bit of hearing loss but she has never regretted the move. It has been such a comfort to my friend to know she is well cared for.

    It makes quite a difference when the elderly have their faculties. I read this thread and think you are all amazing and loving people be so understanding and adaptive to your families' situations. Prayers for you and your families.
  • DooneDoone Shipmate
    @jedijudy 🕯 and spout away, as Piglet says, and hugs from me as well.
  • SarasaSarasa All Saints Host
    Spout away @jedijudy. Managing elderly parents is tricky enough without siblings making it more difficult.
  • jedijudyjedijudy Heaven Host
    Thank you all! It is a comfort to know that several of us are in that same boat and can support and commiserate with each other.

    Oh, I think Ms. Useless might have been feeling a tad guilty. She called today to say her elder son, his wife and their new daughter are coming down to visit the great-grandparents. Ms. U suggested that she could stay an extra day or two if that would give me a break. I thanked her and said that our parents have many appointments surrounding the days that precious, wee K ( :love: ) will be here.

    I am not holding my breath that U is suddenly going to become thoughtful or anything of the sort.
  • Yeesh. My mother called for the third time to find out all about the COVID that I do not have. Because I must have it, in spite of my denials, because I was so unwise and undutiful as to bring my son home from college against her orders once he was past the contagious stage. It therefore follows that I must have it and be hiding the fact from her. Oy.
  • 🕯Mighty hugs for @jedijudy and @Lamb Chopped
  • I have a bit of a sibling situation too. My sister-in-law has a long term chronic condition which has flared up this year, possibly because the hormonal swings of the menopause are affecting her usual medication. My brother and sister-in-law have been playing this down to my parents all year, as they don't want to worry them.

    Since we were told that Dad's cancer was terminal, they have swung even further towards keeping quiet and not adding to Mum and Dad's worries.

    The snag is that they are not visiting Mum and Dad nearly as often as they theoretically could, and, while Mum and Dad would never criticise my brother, and neither would I, Mum and Dad are sad that they are not seeing more of my brother.

    I'm not going to break my brother's confidence, and I don't want to add to my brother's stress, but I'd dearly like to either reassure my parents, or give my brother a nudge to visit more.

    I'm also getting a clear message that once Mum is own her own, I will be the child providing most of the support, but that's ok, and entirely reasonable in the circumstances.
  • SarasaSarasa All Saints Host
    edited December 2020
    Your mother sounds rather a lot like mine @Lamb Chopped before dementia really took hold. She was always trying to get us to admit we hadn't had a great time on holiday even when we had for instance. I gave up telling her anything about health issues as she couldn't be supportive about it, just annoying.
    @jedijudy , hope your parents enjoy the new great grand-child and your sister does at least go and say hello, and maybe take them to one of their appointments or is that too much to ask?
    @North East Quine , we had a similar situation last year when mum first went into care. My brother was seriously ill in hospital and obviously we didn't want to worry mum about that. He's a musician so I sent him on a world tour! Now mum seems to have forgotten she has a son at all. My sister in law managed a few visits, including coming over between. Christmas and New Year for mum's Christmas outing for which I was very grateful. In a former life she was an actress and she was the life and soul of the party even though my brother had only just come out of intensive care after his condition had nosedived. I hope your brother can at least pop in and just say his wife has had to do something else. Hope your dad has recovered at least somewhat from not being very well last week
    Not sure what is happening with my MiL. Social Services were supposed to be doing an emergency visit last week, but my BiL hasn't told anyone what happened. I assume he managed to convince them that things are fine as they are, even though they are not. My husband is going back up there next week for a couple of days, so I'll know more then.
  • North East QuineNorth East Quine Purgatory Host
    edited December 2020
    Dad is better than he was, but has no energy at all. He still doesn't look ill. I think Mum and Dad would see through a fictitious story. I would like my parents and brother to communicate - for them to say they'd like more contact, and for him to say why it's difficult. I feel that the lack of communication is going to involve hurt all round and since I know both sides, I should be able to help resolve it.

    I had an odd thought yesterday - sometimes my father looks very like his father, my grandfather. I've always enjoyed spotting those glimpses of my grandfather. It's as though he hasn't completely gone. It happened yesterday; Dad waved his hand in a gesture my grandfather used to make and I had a minute in which it might have been my grandfather sitting there. And then I realised that I'm going to "lose" my grandfather, too.

    Sarasa, I hope your situation works out, without any falling out of the siblings.
  • jedijudyjedijudy Heaven Host
    I'm very much enjoying your virtual hugs and sending them back to all of you!

    @Sarasa My sister will no doubt be with her son and his family when they are with Mom and Dad. She could take them to their appointments, but that would entail a lot of preparation. If it weren't for Covid, she could go with us. I think she might have a different point of view of our real lives if she had to experience just one week with us. Especially a week like any of the past four or five!!
  • BroJamesBroJames Purgatory Host
    It’s a really difficult situation, NEQ. Either your parents need a convincing reason for his absence, or they will feel hurt because of it. Are you able to put it to him that bluntly?

    It may be that the anxiety they’d feel about your s-i-l would be less bad than the hurt they would feel about his visiting less with no explanation.
  • No, I don't think I am able to put it to him that bluntly. I think he's struggling as it is. But I'm concerned that if he realises there was hurt once it's too late to do anything about it, he's going to take it very badly.
  • HuiaHuia Shipmate
    Sometimes I used to wish I were an orphan - with no siblings
  • Sending virtual hugs to all. You are all doing such hard work. Also sending a round of smacks upside the head for unsupportive siblings.
  • Gee DGee D Shipmate
    I had an odd thought yesterday - sometimes my father looks very like his father, my grandfather. I've always enjoyed spotting those glimpses of my grandfather. It's as though he hasn't completely gone. It happened yesterday; Dad waved his hand in a gesture my grandfather used to make and I had a minute in which it might have been my grandfather sitting there. And then I realised that I'm going to "lose" my grandfather, too.

    Do you think you could say that to your father? That course seems to us to have potential plusses and minuses. Much sympathy from us for the problems you're going through.
  • SarasaSarasa All Saints Host
    My brother looks scarily like my dad at time. He has a way of squinting at what's his reading that is just like my father. Hope you dad is still doing OK @North East Quine .
    I think my husband's family have just about managed to decide what the way forward, at least for the time being, is with their mother. They are having a company do three visits a day. I know my MiL will be very unhappy about that, and it is really not enough help, but at least it is something they can all agree too. She really does need to be in a home, but at present with visiting restrictions I can see why that perhaps wouldn't be for the best.
  • Thank goodness, @Sarasa ! At least if something happens there won't be too long an interval before your MiL is found. (I know that sounds heartless, but given APs reluctance to press the red button if they fall, or feel ill, even if they deign to wear it... it's something)
  • Bill_NobleBill_Noble Shipmate
    edited December 2020
    Hi. I haven’t read the 50 pages so I apologise if this has been covered:

    My mum is experiencing Charles Bonnet Syndrome, which is where a perfectly active and healthy mind gets bored with the inaccurate information it receives from degenerating eyeballs.
    Consequently the mind starts improvising in the visual medium to keep itself amused. Obviously she found this distressing because she did not know what was happening. I found a helpful article in New Scientist magazine (November 2016, written by Helen Thompson. It’s available online for those of us who subscribe but there’s loads of info on any official health website if you are interested.) Mum still experiences the imagery but continues maintain her usual robust and no-nonsense approach 🙂. Thankfully she has no other significant issues apart from the normal frailties of age. But then I am a guy and I don’t always notice stuff 😁

    Hey ho. We work with what we have.

    (Obviously not all visual issues can be tied to CBS. Please consult an expert)
  • Urinary Tract Infection does it too. We've had a dwarf crossing the room - she knew it was a dwarf because "it was wearing a dwarf's uniform". As in Snow White, one wonders, or Thorin Oakenshield - never made clear, we were supposed to know what she meant. Also goldfish swimming across the carpet, an orange cat, and writing on the wall in a language she couldn't read. Not mene mene tekel upharsin, as far as we could tell, and she had gone to Sunday School as a girl.
  • SarasaSarasa All Saints Host
    @Bill Noble, my mother has macular degeneration and I was never sure if some of the things she thought happened (my long dead dad sitting at the end of the sofa) were due to that or Charles Bonnet Syndrome or to her increasing dementia. As @Penny S says urinary tract infections can play havoc with an elderly persons cognition.
    I
  • Some elderly people with severely impaired vision seem to interpret dreams as reality, presumably because they can see the dreams so much more vividly. It happened to my husband’s grandmother in the last year or two of her life, though she wasn’t confused at all otherwise.

    It also happened to my dad occasionally. I remember him being in a very resentful mood once when I arrived at the nursing home, as he was convinced one of the carers he didn’t like much had wheeled him out of his room into the middle of the night, taken him into a garage and poured oil on his head, but then he was rescued by a much nicer carer called Obama whom he hadn’t seen before. I did suggest he might have dreamt this, but he wasn’t convinced.
  • Aaargh! I think that we are still allowed to visit my parents whenever, as Dad is terminally ill, but it doesn't seem as clear-cut as it was. We were going to visit on Boxing Day, but it seems sensible to visit on Christmas Day instead which is definitely allowed. We can have our Christmas dinner on Boxing Day instead.

    If we set off at 7.30am we could be at my parents by 10, and then we'd leave at noonish to avoid tiring Dad with a long visit. My brother and sister in law are planning to visit between 3 and 4. If we left at noon, Dad could have his nap before they arrived.

    Except - Mum is convinced that if we visit on Christmas Day she has to provide us with a Christmas Dinner. * bangs head off wall*

    I am amazed and grateful that this is a problem, though. In September we were told that Dad might live to see Christmas, but "probably not." I assumed that if he was still alive at Christmas, he would be really ill. There was a flurry of planning in Sept, with the McMillan nurse offering a hospital bed in their home, etc etc.

    And here we are, three days from Christmas. Dad still looks well, he's still having no problems using the stairs and sleeping in his own bed upstairs, he has no care needs yet. He's sleeping a lot more, but that's it. He's still his usual witty self. The McMillan nurse says that he is "amazing."
  • PigletPiglet All Saints Host, Circus Host
    Well done, North East Dad! :)
  • DooneDoone Shipmate
    Indeed!
  • We're going to visit on Christmas Eve, which is definitely allowed. Just have to see if we can pick up our butcher order tomorrow instead of Thursday.
  • SarasaSarasa All Saints Host
    Glad you've got a plan sorted @North East Quine and that your dad is doing so well.
    I attempted to see mum in her care home on Monday. I was booked in for a lateral flow test, but had a phone call just before I arrived to say the visit was cancelled. This was partly due to the home abandoning the lateral flow test visits due to us being in Tier 4, but mainly as mum was asleep having been up all night. I'm booked in for a visit next week in their pod, basically a prison visit with a Perspex screen between us, and at least I got to drop off her presents.
    I may take my husband to act as my ears, but he's expected by his family to catch a train, a tube, a train and a bus and go and spend some days with his mother, who is in Tier 3. I think it is a really stupid idea, but he's feeling very pressured to do it.
  • That sounds really difficult, Sarasa.
  • Could he perhaps hire a car, Sarasa?

    Glad to hear good news from the NE family :grin:
  • SarasaSarasa All Saints Host
    Think it's too late to hire a car, or at least not without it costing an arm and a leg, but I might suggest he tries that. He knows he can get his rail ticket refunded. The annoying thing is he is supposed to be there to make sure his mother doesn't reject the carers that are starting next week. It was obvious that's what she needed last Christmas but no one could persuade BiL, the main carer, to agree.
  • Well a FaceTime/thingy festive call with my AP was....... .....Interesting.

    Face to face, AP needs a vast amount of time to process what has been said....to consider the reply..... and then speak that reply out.
    Face to face, everyone can be patient and wait calmly.

    Introduce technology and it just becomes surreal to the point of something I m not quite too happy about. Other person at APs end holding up the phone and chivying is all on. It seems to be all about Us a Relatives, viewing our APs
    I ll be glad when this is all over.


    However
    AP finally seems to have got the hang of it all! Seeming to enjoy this new and novel way of behaving! Who knew? Maybe they might take up the telephone next?

    (Mind you, the last time that happened AP randomly put the phone down on a table and wandered off, leaving the other person having to contact the home and ask the staff to end the call.)

    Hoping folk here have better Christmas contact than I managed!
  • I had the first spoken contact with my older sister yesterday. I managed to get through to her Home at the first attempt, but she had been taken out for a walk in the sunshine, so that was good news. I rang back later and my sister seemed ok but took the handset out of the office into the corridor where the signal was terrible, so after a very broken chat I rang off. Still , it was good to make contact for the first time in months and she seemed pleased.
  • @Puzzler sounding good


    I guess we take what we can in these odd times
  • The Christmas Eve visit went well, but Dad was very tired. Still his usual witty self, but with no energy at all. He told me that he is determined not to die and blight the festive season, but he sees no reason to live much beyond 2 Jan.

    Given the prognosis last September, being able to phone and wish him a happy Christmas was the highlight of my day today.
  • PigletPiglet All Saints Host, Circus Host
    {{{NEQ}}}
  • (((NEQ)))
  • SarasaSarasa All Saints Host
    Thinking of you and your dad @North East Quine. He sounds like a wonderful man.
    My husband has cancelled the train ticket for Monday and will try and book a car for a visit to his mother sometime next week. Given the number of cases of covid in our bit of London it sounds very sensible. I am much relieved.
  • That sounds sensible, Sarasa. Yes, he is wonderful. He's been making lists - golf courses played, hills climbed, cars owned and I don't know what else, but all his lists are in a folder and it looks quite thick....

    My brother's mother-in-law has been admitted to hospital with kidney stones, so my poor brother and sister-in-law are struggling with everything.
  • PigletPiglet All Saints Host, Circus Host
    Oh dear - that's the last thing they need!
  • {{{NEQ}}} and family
  • jedijudyjedijudy Heaven Host
    (((NEQ))) I'm so glad you were able to talk to your Father on Christmas!

    You all have heard me complain about my sister, Ms Useless. Well, now I have to tell you that she did something nice!

    While Mom is in the hospital, I've been spending most of the days with her, and running home to check on Dad and shower and change, so Christmas plans for the three of us were right out the window. Sister called and asked if Dad had a Christmas dinner planned, and should she order something for him. I told her the original plan was for me to make a small pot roast dinner for the three of us. Well, all of a sudden, she was including me in the dinner delivery! So, for Christmas, after being with Mom all night again, I took care of her morning needs, ran home to shower and change (ahhhhhh, such a treat), then went over to Dad's and enjoyed a fried shrimp dinner with him! She ordered three dinners with desserts so Dad would have enough for leftovers.

    So, there's your Christmas miracle!
  • Wonders will never cease!

    Any chance of her doing the night shift with your Mum?
  • @jedijudy - I salute you, for doing what you do for your Mother, and also for your delight in your sister's (unexpectedly) kind thought <happy, warm smiley>

  • SarasaSarasa All Saints Host
    That was a kind thought of your sister's @jedijudy . A night shift would be good though. How is your mum doing?
    I'm off to see mine this morning. I've booked a slightly later visit so I hope mum is awake this time. I'm taking a book of photos I made up yesterday. Mum's eyesight is too bad to really see them, but I hope it'll give the carers something to chat with her about.
    Husband has managed to get a car for today, and is shortly off too see his mum.
  • jedijudyjedijudy Heaven Host
    I would fall down in a dead faint if Ms Useless would take a night shift with Mom!

    Physically, Mom is pretty good. Mentally she's on some other planet. I was able to take Dad to see Mom yesterday for a bit. There is only one person allowed to visit in the hospital, but I think they were glad that I've been helping with Mom, so they bent the rules (again!) for us. Mom and Dad were thrilled to see each other, but when I called Mom last night, she had no memory of seeing either of us. :bawling:

    Dad saw a huge change in her in the six days since he saw her last. It was sad to listen to their conversation. Dad's been getting worse mentally with his Alzheimer's too, so they would ask the same questions and make the same statements half a dozen times, and every time it was new to them.

    Sarasa, I printed out a lot of pictures for my mom, too. I'll bet your mom will love the ones you are giving her! This morning I printed a picture of Mom and Dad together in the hospital yesterday. Maybe that will jog a memory that she actually did see Dad.
  • Apparently AP has done their Festive Duties for the year now.

    Dear Sibling’s visits now consist of a genuinely very cheery “hello” followed by two sentences, at most.
    Then AP falls fast asleep.........

    Sigh

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